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<channel>
	<title>Sex Change MTF FTM SRS &#187; Vaginoplasty</title>
	<atom:link href="http://srsmiami.com/blog/category/vaginoplasty/feed/" rel="self" type="application/rss+xml" />
	<link>http://srsmiami.com/blog</link>
	<description>Conversation with Dr. Harold Reed of the Miami SRS Centre</description>
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		<title>Desperate seeking MTF</title>
		<link>http://srsmiami.com/blog/2012/05/05/933/</link>
		<comments>http://srsmiami.com/blog/2012/05/05/933/#comments</comments>
		<pubDate>Sat, 05 May 2012 20:57:27 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[Vaginoplasty]]></category>
		<category><![CDATA[Vaginoplasty and age limits]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=933</guid>
		<description><![CDATA[May 4, 2012 Dear Dr. Reed, Hello my name is Agnes I&#8217;m 34 and I&#8217;m a pre-op trans women. I&#8217;m guessing that you get letters like this all the time but what can it heart. Where to start from the beginning new from a young age struggled all my life to fit in. Mom left [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment -->May 4, 2012</p>
<p>Dear Dr. Reed,</p>
<p>Hello my name is Agnes I&#8217;m 34 and I&#8217;m a pre-op trans women. I&#8217;m guessing that you get letters like this all the time but what can it heart. Where to start from the beginning new from a young age struggled all my life to fit in. Mom left when I was one didn&#8217;t here or see her till around 12. Dad kicked me out off the house at the age of 10. Grand parents raised me told them that I felt like a girl inside and they did nothing to help as they were older and this was unheard of in there time to them so they just bushed it of and started to spoil me hopping that it would just pass so do to I was only a kid and had went to the only people that gave cared about me and they didn&#8217;t help I was Forest to Live a life that would unfold to be a train rack. I&#8217;m having a really hard time writing this letter not only emotionally but that I have learning disabilities and truly have know clue how to write something like this. But back to my story so getting stuck in the male rule for a big part of my life then I started to think may be I can live with this and that transitioning wasn&#8217;t the answer got involved with a girl and tried to fit that hole Man Women bull  and had a kid we split up and I kinda realized at that time that this wasn&#8217;t working all the time I was depressed and felt disconnected and know what this was all about I need to transition to be happy so I started to transition at the age of 24 but not really having any income or education it&#8217;s hard to survive. So I got in a relationship with another girl but told here every thing up front and she seemed cool with it we got married and had a child and I slowly fought transitioning full time. Still didn&#8217;t work at this time I&#8217;v wasted 1/3 of my life and just made lots of mess&#8217;s then one day my world crashed. Here we go my best friend committed suicide. My grand father died of cancer and I got divorce all in one year sending me down. For If being trans isn&#8217;t hard enough and I wasn&#8217;t all really depressed and all that I became suicidal and ended up in the hospital 3 times that year and to top it off they know diagnose me bipolar so in my life I&#8217;v been diagnosed  with dyslexia, bipolar, ADD and gender identity dysphoria. So know I don&#8217;t now what to do I&#8217;m at a cross road and looking for help I&#8217;m on social Security and Medicaid and know living life as a women full time but will never will have the funds to pay for my surgery which to some people isn&#8217;t a big deal but to me every day I can&#8217;t deal with it I spend a big part of my days depressed think that I will never know what it fills like to be hole it like there&#8217;s this part of me thats just a black hole I look in the mere and see a beautiful women and know that it&#8217;s not about surgery. But the fill of have a penis is hard for me. I have know came in touch with my sexuality and that I like men not women. Im not a real sexual person but that&#8217;s do to the being trans thing never really felt rite sex would always make me depressed so I have my letters form my doctors and I&#8217;m willing to be part of any documentary or other thing that I have to do or if there&#8217;s even a way it bill my Insurance let me know for Im stuck in a hard places.</p>
<p>May 4, 2012</p>
<p>Good afternoon Agnes,</p>
<p>We receive letters like yours every few days, some even longer.  If the outstretched fingers of needy people in this country were just touching, they could form a line clear across the United States.</p>
<p>You have 2 major problems, a desire to have gender conformation and a need to be self sufficient.   Just remember 50% of our patients come in with a sponsor, could be a loved one, family member, spouse, business partner, friend, or church group.   50% of women in the United States get married and never work another day in their lives (at a job that is).  They are supported  (sponsored).</p>
<p>Please call your County, Department of Social Services for help.</p>
<p>&nbsp;</p>
<p>Best wishes for a restful weekend,</p>
<p>Harold M. Reed, M.D.<br />
305-865-2000</p>
]]></content:encoded>
			<wfw:commentRss>http://srsmiami.com/blog/2012/05/05/933/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<item>
		<title>Sorry about an unpleasant moment, please reconsider</title>
		<link>http://srsmiami.com/blog/2012/04/29/sorry-about-an-unpleasant-moment-please-reconsider/</link>
		<comments>http://srsmiami.com/blog/2012/04/29/sorry-about-an-unpleasant-moment-please-reconsider/#comments</comments>
		<pubDate>Sun, 29 Apr 2012 14:20:38 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[MTF Grants]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=922</guid>
		<description><![CDATA[April 29, 2012 Dear Harold, It&#8217;s been a while. Hope you are well and no doubt, very busy.  I hope you remember me, I&#8217;m that slightly rebellious lady that perhaps determination and over sensitivity caused you some irritation. I can in retrospect understand that. It&#8217;s been six years struggling to have completion and the frustration [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment -->April 29, 2012<br />
Dear Harold,<br />
It&#8217;s been a while. Hope you are well and no doubt, very busy.  I hope you remember me, I&#8217;m that slightly rebellious lady that perhaps determination and over sensitivity caused you some irritation. I can in retrospect understand that. It&#8217;s been six years struggling to have completion and the frustration has at times been overwhelming. I&#8217;m now the subject of a documentary film and hence, have secured finance for my surgery. It is limited finance I can assure you and my general financial position is not so balanced. I live in a Housing Community organisation apartment. I have a son who needs my emotional and income support.</p>
<p>I would humbly ask if you would grant me your discount again so I can utilize your cutting edge MTF procedure.  It would offset travel and accommodation expenses and help me no end.  At last I can relax a little and proceed at a slower pace.  My computer has frozen five times in sending this mail so I&#8217;d better stop here.  I await your response with hope and thanks.<br />
Wendy</p>
<p>Good morning Wendy,</p>
<p>Honestly, I have no recollection at this time.</p>
<p>More importantly is that you are medically qualified for surgery, and that you have 2 current therapy letters of clearance, one of which is from a therapist with a doctoral degree.<br />
We have sent this letter out to all prospective patients in the past 6 months.  Perhaps we can help you as well&#8230;<br />
Thank you for your interest in what we do.<br />
After reading the attached, if you believe I am the doctor for you, please initiate a consultation over the phone with our office by sending us your name, address, and telephone number<br />
in an envelope along with a check for 250.  We&#8217;ll get started ASAP.  We&#8217;ll have a lot to talk about.<br />
This year we are re-vitalizing our Grant with a slogan similar to one a few years ago (&#8220;the first 10 in 2010&#8243;), now it is &#8220;the first 12 in 2012.&#8221;   This should reduce your fees<br />
by 10 to 20%, based upon need and availability of funds.<br />
So far 3 positions have been filled this month.<br />
Call the office and speak with Anne our amiable office manager for details.  She is the brains behind pa and the maker of deals.</p>
<p>Cordially,</p>
<p>Harold M. Reed<br />
1111 Kane Concourse, Suite # 311<br />
Bay Harbor Islands, Florida 33154<br />
305-865-2000</p>
]]></content:encoded>
			<wfw:commentRss>http://srsmiami.com/blog/2012/04/29/sorry-about-an-unpleasant-moment-please-reconsider/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Phalanthropist wants to reconfirm &#8220;the best we can do&#8221;</title>
		<link>http://srsmiami.com/blog/2012/04/29/phalanthropist-wants-to-reconfirm-the-best-we-can-do/</link>
		<comments>http://srsmiami.com/blog/2012/04/29/phalanthropist-wants-to-reconfirm-the-best-we-can-do/#comments</comments>
		<pubDate>Sun, 29 Apr 2012 14:14:53 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[2012 Promotion]]></category>
		<category><![CDATA[MTF]]></category>
		<category><![CDATA[MTF Grants]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=916</guid>
		<description><![CDATA[April 29, 2012 Dear Dr. Reed, Allow me to introduce myself. My name is J. F. Scott and I have a few friends who have set up consultations with your office.   I know not to discuss names etc due to hippa laws,  But my question is a very close friend of mine will be discussing [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment -->April 29, 2012</p>
<p>Dear Dr. Reed,</p>
<p>Allow me to introduce myself. My name is J. F. Scott and I have a few friends who have set up consultations with your office.   I know not to discuss names etc due to hippa laws,  But my question is a very close friend of mine will be discussing a male to female srs procedure.  My question is. I will be taking care of the cost via a cash  payment but need to know what the cost for the procedure is and approximate hospitalization costs if the procedure is done at your location.  If you can let me know I would greatly appreciate it.<br />
Thank you</p>
<p>J. F. Scott</p>
<p>&nbsp;</p>
<p>April 28, 2012</p>
<p>Good morning Mr. Scott,<br />
Thank you for your very generous support.  We also known an unobtrusive woman fund for at least 5 patients out of kindness of her heart.  Imagine that.  This only confirms there is goodness in this world.</p>
<p>Our fees for surgery are posted on our web-site.  Consultation is 250.  Vaginoplasty is 14,500 and this includes surgery, anesthesia, use of the facility, an afternoon and night of RN private duty nursing care with myself in attendance throughout the night, and post-operative followup care.  For touch ups (typically 4 months later) we simply ask the patient to pay 600 for anesthesia only.</p>
<p>Stents (vaginal dilators) 500 are additional as are out of pocket expenses for compressive stockings, bed protectors &#8220;chucks&#8221;, and some medications (perhaps 130 total for that).  We can supply patients with clean stockings gratis if need be.  On the day after surgery, the patient is conveyed to one of 2 Hotels, the Baltic or Daddy O.  During the warmer months the rates are reduced to about 85 to 125 per day (could be less) .  Both hotels have breakfast spreads gratis.   There is no additional charge for 2 in a room.</p>
<p>Additionally all prospective patients for the past 6 months have received this letter&#8230;</p>
<p>Thank you for your interest in what we do.   After reading the attached, if you believe I am the doctor  for you, please initiate a consultation over the phone with our office by sending us your name, address, and telephone number  in an envelope along with a check for 250.  We&#8217;ll get started ASAP.  We&#8217;ll have a lot to talk about.</p>
<p>This year we are re-vitalizing our Grant with a slogan similar to one a few years ago (&#8220;the first 10 in 2010&#8243;), now it is  &#8220;the first 12 in 2012.&#8221;   This should reduce your fees by 10 to 20%, based upon need and availability of funds.   So far 3 positions have been filled this month.   Call the office and speak with Anne our amiable office  manager for details.</p>
<p>Cordially,</p>
<p>Harold M. Reed<br />
1111 Kane Concourse, Suite # 311<br />
Bay Harbor Islands, Florida 33154<br />
305-865-2000</p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Evelyn has a super insurance program with Aetna</title>
		<link>http://srsmiami.com/blog/2012/04/29/evelyn-has-a-super-insurance-program-with-aetna/</link>
		<comments>http://srsmiami.com/blog/2012/04/29/evelyn-has-a-super-insurance-program-with-aetna/#comments</comments>
		<pubDate>Sun, 29 Apr 2012 13:57:55 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[Insurance coverage]]></category>
		<category><![CDATA[MTF]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=909</guid>
		<description><![CDATA[April 27, 2012 Dear Dr. Reed, I have been searching through information on surgeons who perform the GCS/SRS (or whichever acronym you like), and one thing that sticks out is that no surgeons actually accept medical insurance for a procedure that has been labeled medically necessary. As someone with a need for these procedures to [...]]]></description>
			<content:encoded><![CDATA[<p>April 27, 2012</p>
<p>Dear Dr. Reed,</p>
<p>I have been searching through information on surgeons who perform the GCS/SRS (or whichever acronym you like), and one thing that sticks out is that no surgeons actually accept medical insurance for a procedure that has been labeled medically necessary. As someone with a need for these procedures to be done, I wonder why that is?</p>
<p>As an individual case, I carry Aetna HMO, with full coverage for GCS/SRS, breast augmentation, FFS, among other things (I even got my hair transplant(s) covered fully), and the insurance company does not use &#8220;reasonable &amp; customary&#8221; with my doctors, due to my medical plan. For example, I am working with Aetna as we speak to have a letter of medical coverage sent out, itemized for the procedures I am schedule for, with the name of the procedure, the procedure code, the cost that the surgeon has quoted me with and with that document, they will craft a document of full coverage for the procedures. This document should serve as a statement, in writing, that the company will pay these fees as shown following the procedures. Shouldn&#8217;t this be good enough?</p>
<p>I only ask this because it seems that for many, and myself included, are being excluded from being able to undergo these procedures simply because we cannot raise the necessary tens of thousands of dollars to pay for these procedures upfront. For some, short term loans may be an answer, but at least in my case, a pending<br />
divorce has left my credit score unworthy of a loan for this operation. So here I stand, with great medical insurance in one hand, yet no doctor to go to who will accept it. What have we fought so hard for to get insurance coverage if no one takes it? What point did we have fighting to get it called &#8220;medically necessary&#8221; if no doctor will perform the procedure without money in their hand upfront?</p>
<p>Perhaps I am missing something.<br />
Thank you for taking the time to address my situation.</p>
<p>Evelyn</p>
<p>April 28, 2012<br />
Good afternoon Evelyn,<br />
There are insurance plans and there are insurance plans.<br />
What they pay out is in good part related to what is paid in,<br />
and if this program is under Johnson and Johnson, this may have<br />
impact. Your experience is atypical, but I am happy it works<br />
for you.<br />
You are welcome to call Aetna and get a confirming letter, if there<br />
is interest in me as your surgeon.. Our fees are posted on web-site.<br />
We do encourage all patients who say they have insurance to<br />
inquire about out of network benefits. If we were to join Aetna we might<br />
find ourselves engaged in taking care of the low end policy holders as well<br />
and that&#8217;s what we do not want to do.</p>
<p>Sincerely,</p>
<p>Harold M. Reed, M.D.<br />
305-865-2000</p>
<p>At 08:23 AM 4/28/2012, you wrote:</p>
<p>Dr. Reed,<br />
First, let me say thank you for your response. It is refreshing to hear back from a fellow professional so quickly on such an important topic. Now, on to your response:<br />
If you had taken the time to read my email fully, you would have seen that this is not about how much, or what percent they will pay. This is about Aetna paying for my procedures fully. For example, I recently had 2361 follicular unit transplants done on my head to restore my natural fullness and restore a feminine hairline. At $4.75 per transplant, plus fees, and aftercare, the bill was $11,581. Since the doctor, Philadelphia, PA was not affiliated with any insurance (as hair transplants typically are seen as cosmetic), I added him to my plan as a non-participating provider, giving him the same coverage as my other doctors. Since he was not a network doctor though, he was not contractually obligated to accept the reasonable &amp; customary reimbursement and as such, was paid $11,531. I had the pay a $50 outpatient surgery co-pay.<br />
Again. for example, I am scheduled with Dr. Lyle for forehead advance with brow bone reduction, thyroid cartilage reduction and breast augmentation on August 28th. Because this will be done as an outpatient procedure at a hospital under general anesthesia, there will be hospital fees, anesthesiologist fees and Dr. Lyle&#8217;s fees. For all three procedures, Dr. Lyle is billing me $13,600. Aetna has sent me, in writing, that they will pay $13,600 for the procedures. So your worry about money is unfounded.</p>
<p>I hope this answers your questions regarding insurance and calms your fears regarding being paid. I also want to let you know that this insurance program, through Aetna, is self-insured though my company, Johnson &amp; Johnson, where I serve as the Gender Transition Liaison. There are three other MTF TS&#8217;s at my company who are currently searching for capable, competent doctors who will work with our insurance. I hope I can go back to them, as well as many others who have insurance, but no where to use it, and let them know that Dr. Harold Reed is one of them.<br />
Sincerely,<br />
Evelyn<br />
-<br />
Subject: Re: Insurance<br />
April 27, 2012<br />
Dear Eveleyn,</p>
<p>Simply stated: the reimbursement is not a fair compensation for the tremendous amount of work involved both pre, intra and post-operatively. Transsexual patients need a lot of care and support.<br />
We pay our help very well, have lots of overhead expenses, go to societal meeting occasionally out of the country, at which time our office is not earning any revenue. Insurance companies<br />
typically pay out 1 dollar for every 2 they take in. This covers their cost, and provides for some profit.<br />
Go on line and see what various BC/BS CEO&#8217;s in each state earn. Seems to be between 800,000 to 3 million a year.<br />
What does Aetna pay for transsexual vaginoplasty (a 5 hour procedure)?<br />
Also you may be interested to learn 50% of our patients come in with a sponsor. Could be a family member, spouse, significant other, business<br />
partner or church group.<br />
Just think&#8230; 50% (plus/minus) of women in America get married and never work another day in their life.<br />
You may wish to approach your insurance carrier about of network provision whereby they will reimburse you for part of the expenses of surgery, if you doctor is not a contracted provide with them.<br />
Thank you for your interest in what we do.<br />
After reading the attached, if you believe I am the doctor<br />
for you, please initiate a consultation over the phone with our office<br />
by sending us your name, address, and telephone number<br />
in an envelope along with a check for 250. We&#8217;ll<br />
get started ASAP. We&#8217;ll have a lot to talk about.<br />
This year we are re-vitalizing our Grant with a slogan similar<br />
to one a few years ago (&#8220;the first 10 in 2010&#8243;), now it is<br />
&#8220;the first 12 in 2012.&#8221; This should reduce your fees<br />
by 10 to 20%, based upon need and availability of funds.<br />
So far 3 positions have been filled this month.<br />
Call the office and speak with Anne our amiable office<br />
manager for details.</p>
<p>Cordially,</p>
<p>Harold M. Reed<br />
1111 Kane Concourse, Suite # 311<br />
Bay Harbor Islands, Florida 33154<br />
305-865-2000</p>
<p>&nbsp;</p>
<blockquote cite=""><p>&nbsp;</p>
<p>&nbsp;</p></blockquote>
]]></content:encoded>
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		<item>
		<title>MTF sexually inactive wants a smoothie, good idea?</title>
		<link>http://srsmiami.com/blog/2012/04/15/mtf-sexually-inactive-wants-a-smoothie-good-idea/</link>
		<comments>http://srsmiami.com/blog/2012/04/15/mtf-sexually-inactive-wants-a-smoothie-good-idea/#comments</comments>
		<pubDate>Sun, 15 Apr 2012 12:53:02 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=887</guid>
		<description><![CDATA[April 13, 2012 Hello Dr. Reed, and thank you for your reply. I am still trying to decide where and when to have surgery. One of the disadvantages for me is that you&#8217;re in Miami, and I&#8217;m in Washington state.  But, I am hoping to be in Miami in August to be with a friend [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment -->April 13, 2012<br />
Hello Dr. Reed, and thank you for your reply.<br />
I am still trying to decide where and when to have surgery.<br />
One of the disadvantages for me is that you&#8217;re in Miami, and I&#8217;m in Washington state.  But, I am hoping to be in Miami in August to be with a friend who will be recovering from her surgery.  I am wondering if a time in early August would be appropriate for a pre-op examination when I&#8217;m not planning to have the actual surgery until approximately Feb 2013?    Another decision I need to make is whether I want vaginoplasty.  I&#8217;ve been sexually inactive for many years, in a stable marriage of 35 years, and not sure that vaginoplasty is necessary.  Do you offer labiaplasty without vaginoplasty?   Do you have opinions regarding this?</p>
<p>And, lastly, how soon should I be starting the process with you?<br />
Thank you!     Melody</p>
<p>April 13, 2012</p>
<p>Good morning Melody,</p>
<p>Thank you for your continued interest in what we do.</p>
<p>You have many options.  Vulvar cleavage and labia is a sine qua non for a female and also a turn on for you  personally and for your spouse.   To best achieve that, it is necessary to draw some &#8220;vaginal tissue&#8221; inward, otherwise  you&#8217;ll have a smoothie, which we can do.</p>
<p>With every best wish,</p>
<p>Harold M. Reed, M.D.<br />
305-865-2000</p>
]]></content:encoded>
			<wfw:commentRss>http://srsmiami.com/blog/2012/04/15/mtf-sexually-inactive-wants-a-smoothie-good-idea/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Need Vaginoplasty and economic assistance (grant 2012)</title>
		<link>http://srsmiami.com/blog/2012/03/04/need-vaginoplasty-and-economic-assistance-grant-2012/</link>
		<comments>http://srsmiami.com/blog/2012/03/04/need-vaginoplasty-and-economic-assistance-grant-2012/#comments</comments>
		<pubDate>Sun, 04 Mar 2012 13:18:23 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[Feminizing vaginoplasty]]></category>
		<category><![CDATA[Grant for MTF surgery]]></category>
		<category><![CDATA[MTF]]></category>
		<category><![CDATA[MTF Grants]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=867</guid>
		<description><![CDATA[February 21, 2012 Dear Dr. Reed, yes i have been on hormones for 12 years. iam 30 and also have met the standards of care but $$$ is a problem as iam on social security. would like to see about payment arranments and neg a down payment&#8230; without this i will continue to suffer mentally [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment -->February 21, 2012</p>
<p>Dear Dr. Reed,</p>
<p>yes i have been on hormones for 12 years. iam 30 and also have met the standards of care but $$$ is a problem as iam on social security. would like to see about payment arranments<br />
and neg a down payment&#8230; without this i will continue to suffer mentally please help me. thanks<br />
Specific_Questions: i need help with the cost&#8230; i spoke with u a few years ago i believe u may have some documents but u gave me a price of 8500 however i havent been able to come with it all at<br />
once. however iam on social security and have a payee so money is guaranteed. also i could do a down payment of maybe 1000.00   Sheanna Palter<br />
HEAR: transgender community</p>
<p>February 21, 2012</p>
<p>Good afternoon Sheanna,</p>
<p>The consultation and surgery and just 2 of the many expenses you will have.</p>
<p>Allow about 1700 additional for the hotel room, medications and supplies, vaginal dilators and perhaps a return trip for a touch up 4 months or so later.</p>
<p>Please consider enlisting the support of a sponsor.  Anne quoted you 12,500 meaning you just got a 2000 discount.  This is Sheanna Palter country here and we want to do well by you.</p>
<p>Harold M. Reed, M.D.<br />
305-865-2000</p>
]]></content:encoded>
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		<title>Had original MTF elsewhere, is it worth it to have a revision</title>
		<link>http://srsmiami.com/blog/2012/01/29/had-original-mtf-elsewhere-is-it-worth-it-to-have-a-revision/</link>
		<comments>http://srsmiami.com/blog/2012/01/29/had-original-mtf-elsewhere-is-it-worth-it-to-have-a-revision/#comments</comments>
		<pubDate>Sun, 29 Jan 2012 13:07:53 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[Vaginoplasty]]></category>
		<category><![CDATA[Vaginoplasty revision]]></category>

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		<description><![CDATA[January 20, 2012 Do u do currective work if it was done out side us and how much is it and is it worth going thru all the pain and surgery again? Carla January 20, 2012 Good afternoon Carla, Yes, we do.  Consultation fee is 250. Start to prepare a work list with photos. Thank [...]]]></description>
			<content:encoded><![CDATA[<p>January 20, 2012</p>
<p>Do u do currective work if it was done out side us and how much is it and is it worth going thru all the pain and surgery again?</p>
<p>Carla</p>
<p>January 20, 2012</p>
<p>Good afternoon Carla,</p>
<p>Yes, we do.  Consultation fee is 250.</p>
<p>Start to prepare a work list with photos.</p>
<p>Thank you for your interest in what we do.<br />
Hope you like what you see.</p>
<p>Harold M. Reed, M.D.<br />
305-865-2000</p>
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		<title>Patient with Ehlers Danlos Syndrome, cutaneous (collagen) laxity, would like MTF vaginoplasty</title>
		<link>http://srsmiami.com/blog/2012/01/14/ehlers-danlos-syndrome-cutaneous-collagen-laxity-would-like-mtf-vaginoplasty/</link>
		<comments>http://srsmiami.com/blog/2012/01/14/ehlers-danlos-syndrome-cutaneous-collagen-laxity-would-like-mtf-vaginoplasty/#comments</comments>
		<pubDate>Sat, 14 Jan 2012 15:43:40 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[Ehlers Danlos Syndrome]]></category>
		<category><![CDATA[MTF]]></category>
		<category><![CDATA[MTF Grants]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

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		<description><![CDATA[January 13, 2012 I have been on estrogen and progesterone for 6 years. only that far into transition due to finances Specific_Questions: I have Ehlers-Danlos Syndrome and worried i cant get grs due to skin. Also wondering about grants im on disability and prolly will never see my change unless a miracle happens. Jennifer January [...]]]></description>
			<content:encoded><![CDATA[<p><!--StartFragment --></p>
<div><sup><span style="font-size: medium;"><span style="font-size: medium;"><sup>January 13, 2012</p>
<p>I have been on estrogen and progesterone for 6 years. only that far into transition due to finances<br />
Specific_Questions: I have Ehlers-Danlos Syndrome and worried i cant get grs due to skin. Also wondering about grants im on disability and prolly will never see my change unless a miracle happens.</p>
<p>Jennifer</p>
<p>January 13, 2012</p>
<p>Good morning Jennifer</p>
<p>Not familiar with Ehlers-Danlos, but your inquiry sent me scurrying to Wikipedia.  Am especially concerned about insensitivity to local anesthetics and problems with platelet aggregation, very serious for major surgery.   You undoubtedly know a lot more about this.<br />
 <br />
Affects 1/5000 births and the severity symptoms and exact type varies widely.</p>
<p>Ideally you should be done in a hospital environment, and we only work at our outpatient center appended to our office.</p>
<p>Other than occasional promotions (vide infra) we cannot subsidize surgery like perhaps a University or state could.</p>
<p>This December, 2011 we re-opened a Grant program with the slogan  &#8220;the first 12 cases in 2012&#8243; (was formerly the first 10 in 2010), based upon need of course.  5 positions have already been taken.</p>
<p>After reading the attached, if you believe I am the doctor for you, please initiate a consultation over the phone with our office by sending us your name, address, and telephone number in an envelope along with a check for 250.  We&#8217;ll get started ASAP.  We&#8217;ll have a lot to talk about.</p>
<p>The grant should reduce your fees by about 10 to 20% from our typically affordable price.  Certain restrictions regarding age and medical history may apply.</p>
<p>Cordially,</p>
<p>Harold M. Reed<br />
1111 Kane Concourse, Suite # 311<br />
Bay Harbor Islands, Florida 33154<br />
305-865-2000<br />
</sup></span></span></sup><sup><strong>Ehlers?Danlos syndrome</strong> (<strong>EDS</strong>) (also known as &#8220;Cutis hyperelastica&#8221;<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-Andrews-0"><sup>[1]</sup>) is a group of </a><a href="http://en.wikipedia.org/wiki//wiki/Heredity">inherited</a> <a href="http://en.wikipedia.org/wiki//wiki/Connective_tissue">connective tissue</a> disorders, caused by a defect in the synthesis of <a href="http://en.wikipedia.org/wiki//wiki/Collagen">collagen</a> (Type I or III). The collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and visceral organs, collagen plays a very significant role and with increased elasticity, secondary to abnormal collagen, pathology results. Depending on the individual <a href="http://en.wikipedia.org/wiki//wiki/Mutation">mutation</a>, the severity of the syndrome can vary from mild to life-threatening. There is no cure, and treatment is <a href="http://en.wikipedia.org/wiki//wiki/Supportive_treatment">supportive</a>, including close monitoring of the digestive, excretory and particularly the cardiovascular systems. Corrective surgery may help with the frequent injuries that may develop in certain types of EDS, although the condition means that extra caution is advised and special practices observed.</sup></div>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-1"><sup>[2]</sup></a></div>
<p><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-1">The syndrome is named after two doctors, </a><a href="http://en.wikipedia.org/wiki//wiki/Edvard_Ehlers">Edvard Ehlers</a> of <a href="http://en.wikipedia.org/wiki//wiki/Denmark">Denmark</a>, and <a href="http://en.wikipedia.org/wiki//wiki/Henri-Alexandre_Danlos">Henri-Alexandre Danlos</a> of <a href="http://en.wikipedia.org/wiki//wiki/France">France</a>, who identified it at the turn of the 20th century.</p>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-2"><sup>[3]</sup></a></div>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-2"> </a></div>
<p><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-2"> </p>
<p></a> </p>
<h2><strong>Contents</strong></h2>
<p> [<a href="http://srsmiami.com/blog/wp-admin/post-new.php#">hide</a>]</p>
<ul>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Classification">1 Classification</a>
<ul>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Other_types">1.1 Other types</a></li>
</ul>
</li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Signs_and_symptoms">2 Signs and symptoms</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Genetics">3 Genetics</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Diagnosis">4 Diagnosis</a>
<ul>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Differential_diagnosis">4.1 Differential diagnosis</a></li>
</ul>
</li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Management">5 Management</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Prognosis">6 Prognosis</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Epidemiology">7 Epidemiology</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#Society_and_culture">8 Society and culture</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#In_other_animals">9 In other animals</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#See_also">10 See also</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#References">11 References</a></li>
<li><a href="http://srsmiami.com/blog/wp-admin/post-new.php#External_links">12 External links</a></li>
</ul>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=1">edit</a>] Classification</strong></h2>
<p><strong> </strong><em> </em><em> </em><em> </em><em> </em><em> </em><em> </em><em> </em><em> </em><em> </em></p>
<p>In the past, there were more than 10 recognized types of Ehlers?Danlos syndrome. In 1997, researchers proposed a simpler classification that reduced the number of major types to six and gave them descriptive names.<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-3"><sup>[4]</sup> These six major types are listed here. Other types of the condition may exist, but they have been reported only in single families or are not well characterized. Except for hypermobility, the specific </a><a href="http://en.wikipedia.org/wiki//wiki/Mutation">mutations</a> involved have been identified and they can be precisely identified by <a href="http://en.wikipedia.org/wiki//wiki/Genetic_testing">genetic testing</a>; this is valuable due to a great deal of variation in individual presentation of symptoms which may confuse classification of individuals on purely symptomatic basis. In order of <a href="http://en.wikipedia.org/wiki//wiki/Prevalence">prevalence</a> in the population, they are:<br />
<strong>Name</strong> <strong>Number</strong> <strong>Description</strong> <a href="http://en.wikipedia.org/wiki//wiki/OMIM"><strong>OMIM</strong> <strong>Gene(s)<br />
</strong>Hypermobility type 3 Affects 1 in 10,000 to 15,000 and is caused by an </a><a href="http://en.wikipedia.org/wiki//wiki/Autosomal_dominant">autosomal dominant</a> or <a href="http://en.wikipedia.org/wiki//wiki/Autosomal_recessive">autosomal recessive</a> mechanism. Mutations in either of two separate genes (which are also involved in <strong>Vascular EDS</strong> and <a href="http://en.wikipedia.org/wiki//wiki/Tenascin-X">Tenascin-X</a> deficiency EDS, respectively) may lead to this variant. Extreme hypermobility is the hallmark of this type. <a href="http://omim.org/entry/130020">130020</a> <a href="http://www.genenames.org/data/hgnc_data.php?match=COL3A1"><em>COL3A1</em>, </a><a href="http://www.genenames.org/data/hgnc_data.php?match=TNXB"><em>TNXB<br />
</em>Classical types 1 &amp; 2 Affects approximately 1 in 20,000 to 50,000 people. It is caused by autosomal dominant mechanism and affects </a><a href="http://en.wikipedia.org/wiki//wiki/Type-V_collagen">type-V collagen</a>, as well as type I. Type 1 typically presents with severe skin involvement, and type 2 presents with mild to moderate skin involvement. <a href="http://omim.org/entry/130000">130000</a>, <a href="http://omim.org/entry/130010">130010</a> <a href="http://www.genenames.org/data/hgnc_data.php?match=COL5A1"><em>COL5A1</em>, </a><a href="http://www.genenames.org/data/hgnc_data.php?match=COL5A2"><em>COL5A2</em>, </a><a href="http://www.genenames.org/data/hgnc_data.php?match=COL1A1"><em>COL1A1<br />
</em>Vascular type 4 Is an autosomal dominant defect in the </a><a href="http://en.wikipedia.org/wiki//wiki/Type-III_collagen">type-III collagen</a> synthesis; affecting approximately 1 in 100,000 to 250,000 people. The vascular type is considered one of the more serious forms of Ehlers?Danlos syndrome because blood vessels and organs are more prone to tearing (rupture). Many patients with EDS type 4 express a characteristic facial appearance (large eyes, small chin, thin nose and lips, lobeless ears), have a small stature with a slim build, and typically have thin, pale, translucent skin (veins can usually be seen on the chest and abdomen). About one in four people with vascular type EDS develop a significant health problem by age 20 and more than 80 percent develop life-threatening complications by age 40. <a href="http://omim.org/entry/130050">130050</a> <a href="http://www.genenames.org/data/hgnc_data.php?match=COL3A1"><em>COL3A1<br />
</em>Kyphoscoliosis type 6 Is an autosomal recessive defect due to deficiency of an </a><a href="http://en.wikipedia.org/wiki//wiki/Enzyme">enzyme</a> called <a href="http://en.wikipedia.org/wiki//wiki/Lysyl_hydroxylase">lysyl hydroxylase</a>; it is very rare, with fewer than 60 cases reported. The kyphoscoliosis type is characterised by progressive curvature of the spine (scoliosis), fragile eyes, and severe muscle weakness. <a href="http://omim.org/entry/225400">225400</a>, <a href="http://omim.org/entry/229200">229200</a> <a href="http://www.genenames.org/data/hgnc_data.php?match=PLOD1"><em>PLOD1<br />
</em>Arthrochalasis types 7A &amp; B Is also very rare, with about 30 cases reported. It affects </a><a href="http://en.wikipedia.org/wiki//wiki/Type-I_collagen">type-I collagen</a>. The arthrochalasia type is characterised by very loose joints and dislocations involving both hips. <a href="http://omim.org/entry/130060">130060</a> <a href="http://www.genenames.org/data/hgnc_data.php?match=COL1A1"><em>COL1A1</em>, </a><a href="http://www.genenames.org/data/hgnc_data.php?match=COL1A2"><em>COL1A2<br />
</em>Dermatosparaxis type 7C Also very rare, with about 10 cases reported. The dermatosparaxis type is characterised by extremely fragile and sagging skin. </a><a href="http://omim.org/entry/225410">225410</a></p>
<div><a href="http://www.genenames.org/data/hgnc_data.php?match=ADAMTS2"><em>ADAMTS2</em></a></div>
<div><a href="http://www.genenames.org/data/hgnc_data.php?match=ADAMTS2"><em> </em></a></div>
<p><a href="http://www.genenames.org/data/hgnc_data.php?match=ADAMTS2"><em> </p>
<p></em></a></p>
<p><em> </em></p>
<h3><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=2">edit</a>] Other types</strong></h3>
<p>Although the above classifications are well defined, it is rare for a case to fit neatly in a single category, and cross-over symptoms lead to under-diagnosis or mis-diagnosis. So patients should not rely on the &#8220;fact&#8221; of having a certain type of EDS if cross-over symptoms are evident and might be life-threatening.</p>
<p>&#8220;The large number of distinct types of the Ehlers?Danlos syndrome that have already been identified indicates great heterogeneity, but clearly that heterogeneity is not exhausted by the present classification.&#8221; <a href="http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=130090">[1]</a> Forms of EDS within this category may present with soft, mildly stretchable skin, shortened bones, chronic diarrhea, joint hypermobility and dislocation, bladder rupture, or poor wound healing. Inheritance patterns within this group include X-linked recessive, autosomal dominant, and autosomal recessive. Examples of types of related syndromes other than those above reported in the medical literature include:</p>
<ul>
<li><a href="http://omim.org/entry/305200">305200</a> ? Type 5</li>
<li><a href="http://omim.org/entry/130080">130080</a> ? Type 8 &#8211; unspecified gene, locus 12p13</li>
<li><a href="http://omim.org/entry/225310">225310</a> ? Type 10 &#8211; unspecified gene, locus 2q34</li>
<li><a href="http://omim.org/entry/608763">608763</a> ? Beasley-Cohen type</li>
<li><a href="http://omim.org/entry/130070">130070</a> ? Progeroid form &#8211; <a href="http://www.genenames.org/data/hgnc_data.php?match=B4GALT7"><em>B4GALT7</em> </a></li>
<li><a href="http://omim.org/entry/606408">606408</a> ? Due to Tenascin-X deficiency &#8211; <a href="http://www.genenames.org/data/hgnc_data.php?match=TNXB"><em>TNXB</em> </a></li>
<li><a href="http://omim.org/entry/130090">130090</a> ? Type unspecified</li>
</ul>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=3">edit</a>] Signs and symptoms</strong></h2>
<p><a href="http://en.wikipedia.org/wiki//wiki/File:Ehlers-Danlos_thumb.jpg"><img src="http://en.wikipedia.org/wiki//upload.wikimedia.org/wikipedia/commons/thumb/3/3c/Ehlers-Danlos_thumb.jpg/200px-Ehlers-Danlos_thumb.jpg" alt="[]" width="200" height="150" /></a></p>
<p> <a href="http://en.wikipedia.org/wiki//wiki/File:Ehlers-Danlos_syndrome2.jpg"><img src="http://en.wikipedia.org/wiki//upload.wikimedia.org/wikipedia/commons/thumb/9/97/Ehlers-Danlos_syndrome2.jpg/200px-Ehlers-Danlos_syndrome2.jpg" alt="[]" width="200" height="150" /></a><br />
Individual with EDS displaying <a href="http://en.wikipedia.org/wiki//wiki/Hypermobility">hypermobile joints</a>.<br />
<a href="http://en.wikipedia.org/wiki//wiki/File:Ehlers-Danlos_syndrome4.jpg"><img src="http://en.wikipedia.org/wiki//upload.wikimedia.org/wikipedia/commons/thumb/2/2e/Ehlers-Danlos_syndrome4.jpg/220px-Ehlers-Danlos_syndrome4.jpg" alt="[]" width="220" height="199" /></a> <br />
<a href="http://en.wikipedia.org/wiki//wiki/File:Ehlers-Danlos_syndrome4.jpg"><img src="http://en.wikipedia.org/wiki//bits.wikimedia.org/skins-1.18/common/images/magnify-clip.png" alt="[]" width="15" height="11" /></a><br />
Individual with EDS displaying skin hyperelasticity</p>
<p>Signs vary widely based on which type of EDS the patient has. In each case, however, the signs are ultimately due to faulty or reduced amounts of collagen. EDS most typically affects the joints, skin, and blood vessels, the major signs and symptoms include:</p>
<ul>
<li>Loose, unstable joints that are prone to: <a href="http://en.wikipedia.org/wiki//wiki/Sprain">sprain</a>, <a href="http://en.wikipedia.org/wiki//wiki/Dislocation">dislocation</a>, <a href="http://en.wikipedia.org/wiki//wiki/Subluxation">subluxation</a> (partial dislocation) and <a href="http://en.wikipedia.org/wiki//wiki/Hyperextension">hyperextension</a> (double jointedness) <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-4"><sup>[5]</sup> </a></li>
<li>Early onset of <a href="http://en.wikipedia.org/wiki//wiki/Osteoarthritis">osteoarthritis</a></li>
<li>Easy bruising</li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Dysautonomia">Dysautonomia</a> typically accompanied by <a href="http://en.wikipedia.org/wiki//wiki/Valvular_heart_disease">Valvular heart disease</a> (such as <a href="http://en.wikipedia.org/wiki//wiki/Mitral_valve_prolapse">mitral valve prolapse</a>, which creates an increased risk for infective <a href="http://en.wikipedia.org/wiki//wiki/Endocarditis">endocarditis</a> during surgery, as well as possibly progressing to a life-threatening degree of severity of the <a href="http://en.wikipedia.org/wiki//wiki/Mitral_valve_prolapse#Prognosis">prognosis of mitral valve prolapse</a>) <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-5"><sup>[6]</sup> </a></li>
<li>Chronic fatigue</li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Flat_feet">Flat feet</a></li>
<li>High and narrow <a href="http://en.wikipedia.org/wiki//wiki/Palate">palate</a>, resulting in dental crowding</li>
<li>Vulnerability to chest and sinus infections</li>
<li>Fragile blood vessels resulting from <a href="http://en.wikipedia.org/wiki//wiki/Cystic_medial_necrosis">cystic medial necrosis</a> with tendency towards <a href="http://en.wikipedia.org/wiki//wiki/Aneurysm">aneurysm</a> (even <a href="http://en.wikipedia.org/wiki//wiki/Abdominal_aortic_aneurysm">abdominal aortic aneurysm</a>)</li>
<li>Velvety-smooth skin which may be stretchy, is often translucent, and can contribute to underestimations of chronological age</li>
<li>Abnormal wound healing and scar formation</li>
<li>Low muscle tone and <a href="http://en.wikipedia.org/wiki//wiki/Muscle_weakness">muscle weakness</a></li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Myalgia">Myalgia</a> and <a href="http://en.wikipedia.org/wiki//wiki/Arthralgia">arthralgia</a><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-6"><sup>[7]</sup> </a></li>
</ul>
<p>Other, less common signs and complications may include:</p>
<ul>
<li>Headaches caused by an acquired <a href="http://en.wikipedia.org/wiki//wiki/Arnold-Chiari_malformation">Arnold-Chiari malformation</a> (brain disorder)<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-7"><sup>[8]</sup> </a></li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Osteopenia">Osteopenia</a> (low bone density)</li>
<li>Talipes equinovarus (<a href="http://en.wikipedia.org/wiki//wiki/Club_foot">club foot</a>), especially in the Vascular type</li>
<li>Deformities of the spine, such as: <a href="http://en.wikipedia.org/wiki//wiki/Scoliosis">Scoliosis</a> (curvature of the spine), <a href="http://en.wikipedia.org/wiki//wiki/Kyphosis">Kyphosis</a> (a thoracic hump), <a href="http://en.wikipedia.org/wiki//wiki/Tethered_spinal_cord_syndrome">Tethered spinal cord syndrome</a>, Occipitoatlantoaxial hypermobility<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-8"><sup>[9]</sup> </a></li>
<li>Functional bowel disorders (functional <a href="http://en.wikipedia.org/wiki//wiki/Gastritis">gastritis</a>, <a href="http://en.wikipedia.org/wiki//wiki/Irritable_bowel_syndrome">irritable bowel syndrome</a>)</li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Gastroparesis">Gastroparesis</a></li>
<li>Dental issues, including early-onset <a href="http://en.wikipedia.org/wiki//wiki/Periodontitis">periodontitis</a></li>
<li>Nerve compression disorders (<a href="http://en.wikipedia.org/wiki//wiki/Carpal_tunnel_syndrome">carpal tunnel syndrome</a>, <a href="http://en.wikipedia.org/wiki//wiki/Acroparesthesia">acroparesthesia</a>, <a href="http://en.wikipedia.org/wiki//wiki/Neuropathy">neuropathy</a>) <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-9"><sup>[10]</sup> </a></li>
<li>Vascular skin conditions: <a href="http://en.wikipedia.org/wiki//wiki/Raynaud%27s_phenomenon">Raynaud&#8217;s phenomenon</a>, <a href="http://en.wikipedia.org/wiki//wiki/Livedo_reticularis">Livedo reticularis</a></li>
<li>Blue sclera</li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Swan_neck_deformity">Swan neck deformity</a> of the fingers <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-10"><sup>[11]</sup> </a></li>
<li>Insensitivity to local anesthetics.<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-Laboratory_for_Experimental_Pain_Research-11"><sup>[12]</sup> </a></li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Premature_rupture_of_membranes">Premature rupture of membranes</a> during pregnancy <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-12"><sup>[13]</sup> </a></li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Platelet_aggregation">Platelet aggregation</a> failure (platelets do not clump together properly) <a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-13"><sup>[14]</sup> </a></li>
<li>Weak muscle tone (<a href="http://en.wikipedia.org/wiki//wiki/Hypotonia">hypotonia</a>) in infancy, which can delay the development of motor skills such as sitting, standing, and walking</li>
<li>Arterial/intestinal/uterine fragility or rupture</li>
</ul>
<p> <br />
Because it is often undiagnosed or misdiagnosed in childhood, some instances of Ehlers?Danlos syndrome have been mischaracterized as child abuse.</p>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-14"><sup>[15]</sup> The pain associated with this condition is a serious complication.</a></div>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-14"> </a></div>
<p><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-14"> </p>
<p></a></p>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=4">edit</a>] Genetics</strong></h2>
<p><a href="http://en.wikipedia.org/wiki//wiki/Mutation">Mutations</a> in the following can cause Ehlers?Danlos syndrome:</p>
<ul>
<li><a href="http://en.wikipedia.org/wiki//wiki/Fibrous_protein">Fibrous proteins</a>: <a href="http://en.wikipedia.org/wiki//wiki/COL1A1">COL1A1</a>, <a href="http://en.wikipedia.org/wiki//wiki/COL1A2">COL1A2</a>, <a href="http://en.wikipedia.org/wiki//wiki/COL3A1">COL3A1</a>, <a href="http://en.wikipedia.org/wiki//wiki/COL5A1">COL5A1</a>, <a href="http://en.wikipedia.org/wiki//wiki/COL5A2">COL5A2</a>, and <a href="http://en.wikipedia.org/wiki//wiki/TNXB">TNXB</a></li>
<li><a href="http://en.wikipedia.org/wiki//wiki/Enzyme">Enzymes</a>: <a href="http://en.wikipedia.org/wiki//wiki/ADAMTS2">ADAMTS2</a>, <a href="http://en.wikipedia.org/wiki//wiki/PLOD1">PLOD1</a></li>
</ul>
<p>Mutations in these genes usually alter the structure, production, or processing of <a href="http://en.wikipedia.org/wiki//wiki/Collagen">collagen</a> or <a href="http://en.wikipedia.org/wiki//wiki/Protein">proteins</a> that interact with collagen. Collagen provides structure and strength to connective tissue throughout the body. A defect in collagen can weaken connective tissue in the skin, bones, blood vessels, and organs, resulting in the features of the disorder.</p>
<p>Inheritance patterns depend on the type of Ehlers?Danlos syndrome. Most forms of the condition are inherited in an <a href="http://en.wikipedia.org/wiki//wiki/Autosomal_dominant">autosomal dominant</a> pattern, which means only one of the two copies of the gene in question must be altered to cause the disorder. The minority are inherited in an <a href="http://en.wikipedia.org/wiki//wiki/Autosomal_recessive">autosomal recessive</a> pattern, which means both copies of the gene must be altered for a person to be affected by the condition. It can also be an individual (de novo or &#8220;sporadic&#8221;) <a href="http://en.wikipedia.org/wiki//wiki/Mutation">mutation</a>. Please refer to the summary for each type of Ehlers?Danlos syndrome for a discussion of its inheritance pattern.</p>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=5">edit</a>] Diagnosis</strong></h2>
<p>A diagnosis can be made by clinical observation. Both DNA and biochemical studies can be used to help identify affected individuals. In some cases, a skin biopsy has been found to be useful in confirming a diagnosis. Unfortunately, these tests are not sensitive enough to identify all individuals with EDS. If there are multiple affected individuals in a family, it may be possible to perform prenatal diagnosis using a DNA information technique known as a linkage study.</p>
<h3><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=6">edit</a>] Differential diagnosis</strong></h3>
<div><sup>There are several disorders that have some of the characteristics of Ehlers?Danlos syndrome. For example, in <a href="http://en.wikipedia.org/wiki//wiki/Cutis_laxa">cutis laxa</a> the skin is loose, hanging, and wrinkled. In EDS, the skin can be pulled away from the body but is elastic and returns to normal when let go. In <a href="http://en.wikipedia.org/wiki//wiki/Marfan_syndrome">Marfan syndrome</a>, the joints are very mobile and similar cardiovascular complications occur. In the past, <a href="http://en.wikipedia.org/wiki//wiki/Menkes_disease">Menkes disease</a>, a copper metabolism disorder, was thought to be a form of Ehlers?Danlos syndrome. Because of these similar disorders, a correct diagnosis is very important.<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-15"><sup>[16]</sup></a></sup></div>
<div><sup><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-15"> </a></sup></div>
<p><sup><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-15"> </p>
<p></a> </p>
<p></sup></p>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=7">edit</a>] Management</strong></h2>
<p> </p>
<p>There is no cure for Ehlers Danlos Syndrome. The treatment is supportive. Close monitoring of the cardiovascular system, physical therapy, occupational therapy, and orthopedic instruments (e.g., wheelchairs, bracing) may be helpful. One should avoid activities that cause the joint to lock or overextend.</p>
<p>A physician may prescribe bracing to stabilize joints. Surgical repair of joints may be necessary at some time. Physicians may also consult a physical and/or occupational therapist to help strengthen muscles and to teach people how to properly use and preserve their joints. To decrease bruising and improve wound healing, some patients have responded to ascorbic acid (vitamin C).</p>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-16"><sup>[17]</sup></a></div>
<div><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-16">In general, medical intervention is limited to symptomatic therapy. Prior to pregnancy, patients with EDS should have genetic counseling. Children with EDS should be provided with information about the disorder, so they can understand why contact sports and certain other physically stressful activities should be avoided. Children should be taught early on that demonstrating the unusual positions they can maintain due to loose joints should not be done as this may cause early degeneration of the joints. Family members, teachers and friends should be provided with information about EDS so they can accept and assist the child as necessary.</a></div>
<p><a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-16"> </p>
<p></a></p>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=8">edit</a>] Prognosis</strong></h2>
<p>The outlook for individuals with EDS depends on the type of EDS with which they have been diagnosed. Symptoms vary in severity, even within one sub-type, and the frequency of complications changes on an individual basis. Some individuals have negligible symptoms while others are severely restricted in their daily life. Extreme joint instability, pain, and spinal deformities may limit a person&#8217;s mobility. Most individuals will have a normal lifespan. However, those with blood vessel involvement have an increased risk of fatal complications.</p>
<p>EDS is a lifelong condition. Affected individuals may face social obstacles related to their disease on a daily basis. Some people with EDS have reported living with fears of significant and painful ruptures, their condition worsening, becoming unemployed due to physical and emotional burdens, and social stigmatization in general.</p>
<h2><strong>[<a href="http://en.wikipedia.org/wiki//w/index.php?title=Ehlers%E2%80%93Danlos_syndrome&amp;action=edit&amp;section=9">edit</a>] Epidemiology</strong></h2>
<p> </p>
<p>Ehlers?Danlos syndrome is an inherited disorder estimated to occur in about 1 in 5000 births worldwide. Initially, prevalence estimates ranged from 1 in 250,000 to 1 in 500,000 people, but these estimates were soon found to be vastly inaccurate as the disorder received further study and medical professionals became more adept at accurately diagnosing EDS. In fact, many experts now believe that Ehlers?Danlos syndrome may be far more common than the currently accepted estimate due to the wide range of severities in which the disorder presents.<a href="http://srsmiami.com/blog/wp-admin/post-new.php#cite_note-17"><sup>[18]</sup> However, the prevalence of the six types differs dramatically. The most commonly occurring type is the hypermobility type, followed by the classical type. The other types of Ehlers?Danlos syndrome are very rare. For example, fewer than 10 infants and children with the </a><a href="http://en.wikipedia.org/wiki//wiki/Dermatosparaxis">dermatosparaxis</a> type have been described worldwide. Ehlers?Danlos affects both males and females of all racial and ethnic backgrounds, although some types are more common among certain groups than others.</p>
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		<slash:comments>2</slash:comments>
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		<title>Had coronary and doing well now, desires MTF procedure</title>
		<link>http://srsmiami.com/blog/2012/01/13/832/</link>
		<comments>http://srsmiami.com/blog/2012/01/13/832/#comments</comments>
		<pubDate>Fri, 13 Jan 2012 14:46:29 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[orchiectomy]]></category>
		<category><![CDATA[scrotectomy]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=832</guid>
		<description><![CDATA[January 8, 2012 Yes have been on hormones for 7 1/2 years and hace been living full time as a woman fr 7 years now. I have natural grown breast. Specific_Questions: On December 21 2010 I had a heart attack and althoe I am doing real good i was told that I may never be [...]]]></description>
			<content:encoded><![CDATA[<p>January 8, 2012</p>
<p>Yes have been on hormones for 7 1/2 years and hace been living full time as a woman fr 7 years now. I have natural grown breast.<br />
Specific_Questions: On December 21 2010 I had a heart attack and althoe I am doing real good i was told that I may never be able to have my SRS. Now I ask is it still posable to have my SRS and if not is there a sugery that will remove the testies and shorten the penis to where I will apear more female down there with no buldge. If so can you give a ball park priceon what it would cost for me to have my SRS or other feminizing sugeries to be able to fit in and feel a bit more normal in apearance.  Carla</p>
<p>Good afternoon Carla,</p>
<p>If you have a letter of medical clearance with reference to a stress EKG, we can do an orchiectomy under local with IV sedation, also perhaps scrotal removal.  We cannot do any surgery that requires general or spinal anesthesia in your case because the Ameican Society of Anesthesiologist&#8217;s physical status classification places you in a class 3 risk.    Please be sure your estrogen levels are carefully monitored to keep you in a safe range, as they are coagulopathic.  Can produce blood clots.</p>
<p>Cordially,</p>
<p>Harold M. Reed, M.D,.<br />
305-865-2000</p>
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		<title>MTF patient seeks Grant for 2012, will lose weight, needs financial assist</title>
		<link>http://srsmiami.com/blog/2011/12/29/822/</link>
		<comments>http://srsmiami.com/blog/2011/12/29/822/#comments</comments>
		<pubDate>Thu, 29 Dec 2011 14:31:31 +0000</pubDate>
		<dc:creator>Dr_Reed</dc:creator>
				<category><![CDATA[MTF]]></category>
		<category><![CDATA[MTF Grants]]></category>
		<category><![CDATA[Vaginoplasty]]></category>

		<guid isPermaLink="false">http://srsmiami.com/blog/?p=822</guid>
		<description><![CDATA[&#8212; In MTF-SRS-FTM@yahoogroups.com, &#8220;meljo51&#8243; &#60;mellanie462004@&#8230;&#62; wrote: I would like to be considered for the 12 in 2012 grant program. I have been transitioning now for over eight years. I&#8217;ve also been trying to loose weight. Current weight is 230 right now. However, things are changing and I should be down to about 140 by spring. [...]]]></description>
			<content:encoded><![CDATA[<p>&#8212; In <a href="http://groups.yahoo.com/group/MTF-SRS-FTM/message//group/MTF-SRS-FTM/post?postID=3j9W9vTMO0rcZWkQvS8GuyPJlF7izI2YFX2oG72HafqEQoi0vnOHrH1xY0K7CrSJUwS9cBKE0Qv41DihuHcLkwMJ">MTF-SRS-FTM@yahoogroups.com</a>, &#8220;meljo51&#8243; &lt;mellanie462004@&#8230;&gt; wrote:</p>
<p>I would like to be considered for the 12 in 2012 grant program. I have been transitioning now for over eight years. I&#8217;ve also been trying to loose weight.<br />
Current weight is 230 right now. However, things are changing and I should be down to about 140 by spring.</p>
<p>Let me know the particulars and what I have to do on this end.</p>
<p>Thank You</p>
<p>Mellanie</p>
<p>Hi Mellanie,</p>
<p>Thank you for your interest in what we do. </p>
<p>This year we are re-vitalizing our Grant with a slogan similar to one a few years ago (&#8220;the first 10 in 2010&#8243;), now it is &#8220;the first 12 in 2012.&#8221;</p>
<p>So far 5 positions have been filled this month.</p>
<p>Call the office and speak with Anne our amiable office manager for details. We re-open on Tuesday, January 3rd.</p>
<p>Be assured I will send you more information and a reprint of a very comprehensive article that was published a few months ago in Seminars in Plastic Surgery.</p>
<p>Happy and Healthy New Year to you and your loved ones,</p>
<p>Harold M. Reed<br />
1111 Kane Concourse, Suite # 311<br />
Bay Harbor Islands, Florida 33154<br />
305-865-2000</p>
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